Stehanie Romer, HLHS, Crisis Cicatrix, Podcast, Author, Hypoplastic Left Heart Syndrome, Congenital Heart Disease, CHD, Congenitl Heart Defect, CHD Legacy, Advocate, Activist, Survivor, Warrior, Heart Warrior, Fontan

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PODCAST 

Stehanie Romer, HLHS, Crisis Cicatrix, Podcast, Author, Hypoplastic Left Heart Syndrome, Congenital Heart Disease, CHD, Congenitl Heart Defect, CHD Legacy, Advocate, Activist, Survivor, Warrior, Heart Warrior, Fontan
About Us
Stephanie Romer is a 36-year-old Hypoplastic Left Heart Syndrome (HLHS) survivor. She was born in Dayton, Ohio in 1985 and had 3 heart surgeries at Cincinnati, Children's by Doctor Warren Bailey between 1986-1988.  Stephanie was one of the original Fontan patients in 1989.  She is a retired personal assistant, business manager, and nanny and caregiver of 12 years for special needs children and adults. She is currently an Author of Quieting The Clock: Memoir of  a Girl Facing Death and Chasing Freedom. She also continues to be a Community Leader for the Disabled Community and strong voice as a CHD Advocate, Researcher, Motivational Speaker and Writer. She  was also the Director of an Adult CHD Patient Group in Tampa, FL.
Crisis Cicatrix is a 28-year-old Hypoplastic Left Heart Syndrome (HLHS) survivor.  Born in 1993, he had his Norwood in ‘93, Hemi-Fontan in ‘94, and Fontan in ’97, at the Children’s Hospital of Philadelphia (CHOP).  He is currently a music and film producer based in Southeast Florida.
Stehanie Romer, HLHS, Crisis Cicatrix, Podcast, Author, Hypoplastic Left Heart Syndrome, Congenital Heart Disease, CHD, Congenitl Heart Defect, CHD Legacy, Advocate, Activist, Survivor, Warrior, Heart Warrior, Fontan