Communities Honoring Disabilities

What's Your Legacy?

Heart Conditions
Heart Conditions

Heart Conditions

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No Wheelchair Disabilities
No Wheelchair Disabilities

No Wheelchair Disabilities

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Down Syndrome
Down Syndrome

Down Syndrome

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Vision Impaired
Vision Impaired

Vision Impaired

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Autism Spectrum Disorder
Autism Spectrum Disorder

Autism Spectrum Disorder ASD

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Hearing Impaired
Hearing Impaired

Hearing Impaired

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Ehlers-Danlos Syndrome
Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome

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Neuro Disorders
Neuro Disorders

Neuro Disorders

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Cancer
Cancer

Cancer

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List of Disabilities
List of Disabilities

List of Disabilities

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New Placard Petition
New Placard Petition

New Placard Petition: Let's Do This!

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Disability Does Not Discriminate
Disability Does Not Discriminate

Disability Does Not Discriminate - Make blog saying Disability has no AGE, RACE, RELIGION, etc

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Chronic Illness vs Disability
Chronic Illness vs Disability

Chronic Illness vs Disability

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ABLE Account
ABLE Account

ABLE Account & Other Resources

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Books - Movies - Articles
Books - Movies - Articles

Books - Movies - Articles

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ABOUT

CHD Legacy was founded by Congenital Heart Disease survivor, Stephanie Romer - one of the oldest living survivors  with half of a heart (HLHS). 

She'd always dreamnt of creating one central location for her community where survivors, loved ones, and medical professionals could educate themselves, find others with CHD, and have an improved quality of life as a result of feeling not so isolated in the world. 

The CHD Legacy Blog was born: Voices of CHD where she featured congenital heart disease survivors as well as her own blog where she speaks out about Taboo Subjects. 

But then...her dream got bigger.

Her entire life she'd volunteered and worked around people of various disabilities and although she spent many years Advocagting for the CHD Community, she felt called for a bigger purpose after relating to the Invisible Disability community and speaking with hundreds of people like her who she felt all had in common SO MANY THINGS ABOUT LIFE - this birthed the new acronym for CHD meaning - Communities Honorying Disablities to proved anther space on the interent to feature people and subjects / stories for people of all Abilities to check out, get educated and feel honored... needs editied

 

for our loved ones and medical commuhnity also to see how MUCH we all have included and to begin to fight for big things together! 

it all starts locally though which is whys she now features local leaders all over the world and shares what different communitites are doing to help their disabled commuhnity. 

in st pete she is VP of Democratic Caucus fighting for change 

 
 

“Act as if what you do makes a difference. It does”

William James

 

THE NEXT GENERATION OF DISABILITIES

HOW ARE YOU BUILDING A LEGACY FOR YOUR LOCAL DISABLED COMMUNITY?

SHARE WITH US!

EMAIL FOUNDER @

STEPHANIE@CHDLEGACY.COM

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